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Cancer incidence estimates for 2022 & projection for 2025: Result from National Cancer Registry Programme, India
Cancer incidence estimates for 2022 & projection for 2025: Result from National Cancer Registry Programme, India
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Cancer incidence estimates for 2022 & projection for 2025: Result from National Cancer Registry Programme, India

Sathishkumar, Krishnan ; Chaturvedi, Meesha ; Das, Priyanka ; Stephen, S ; Mathur, Prashant

Indian journal of medical research (New Delhi, India : 1994), 2022-10, Vol.156 (4), p.598-607 [Periódico revisado por pares]

India: Wolters Kluwer India Pvt. Ltd

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2
Comorbidity and Childhood Epilepsy: A Nationwide Registry Study
Comorbidity and Childhood Epilepsy: A Nationwide Registry Study
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Comorbidity and Childhood Epilepsy: A Nationwide Registry Study

Aaberg, Kari Modalsli ; Bakken, Inger Johanne ; Lossius, Morten I ; Lund Søraas, Camilla ; Håberg, Siri Eldevik ; Stoltenberg, Camilla ; Surén, Pål ; Chin, Richard

Pediatrics (Evanston), 2016-09, Vol.138 (3), p.1-1 [Periódico revisado por pares]

United States: American Academy of Pediatrics

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3
Predicting Survival in Patients With Pulmonary Arterial Hypertension: The REVEAL Risk Score Calculator 2.0 and Comparison With ESC/ERS-Based Risk Assessment Strategies
Predicting Survival in Patients With Pulmonary Arterial Hypertension: The REVEAL Risk Score Calculator 2.0 and Comparison With ESC/ERS-Based Risk Assessment Strategies
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Predicting Survival in Patients With Pulmonary Arterial Hypertension: The REVEAL Risk Score Calculator 2.0 and Comparison With ESC/ERS-Based Risk Assessment Strategies

Benza, Raymond L ; Gomberg-Maitland, Mardi ; Elliott, C Greg ; Farber, Harrison W ; Foreman, Aimee J ; Frost, Adaani E ; McGoon, Michael D ; Pasta, David J ; Selej, Mona ; Burger, Charles D ; Frantz, Robert P

Chest, 2019-08, Vol.156 (2), p.323-337 [Periódico revisado por pares]

United States

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4
The natural history of classic galactosemia: lessons from the GalNet registry
The natural history of classic galactosemia: lessons from the GalNet registry
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The natural history of classic galactosemia: lessons from the GalNet registry

Rubio-Gozalbo, M E ; Haskovic, M ; Bosch, A M ; Burnyte, B ; Coelho, A I ; Cassiman, D ; Couce, M L ; Dawson, C ; Demirbas, D ; Derks, T ; Eyskens, F ; Forga, M T ; Grunewald, S ; Häberle, J ; Hochuli, M ; Hubert, A ; Huidekoper, H H ; Janeiro, P ; Kotzka, J ; Knerr, I ; Labrune, P ; Landau, Y E ; Langendonk, J G ; Möslinger, D ; Müller-Wieland, D ; Murphy, E ; Õunap, K ; Ramadza, D ; Rivera, I A ; Scholl-Buergi, S ; Stepien, K M ; Thijs, A ; Tran, C ; Vara, R ; Visser, G ; Vos, R ; de Vries, M ; Waisbren, S E ; Welsink-Karssies, M M ; Wortmann, S B ; Gautschi, M ; Treacy, E P ; Berry, G T

Orphanet journal of rare diseases, 2019-04, Vol.14 (1), p.86-86, Article 86 [Periódico revisado por pares]

England: BioMed Central Ltd

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5
Recommendations for Improving the Quality of Rare Disease Registries
Recommendations for Improving the Quality of Rare Disease Registries
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Recommendations for Improving the Quality of Rare Disease Registries

Kodra, Yllka ; Weinbach, Jérôme ; Posada-de-la-Paz, Manuel ; Coi, Alessio ; Lemonnier, S Lydie ; van Enckevort, David ; Roos, Marco ; Jacobsen, Annika ; Cornet, Ronald ; Ahmed, S Faisal ; Bros-Facer, Virginie ; Popa, Veronica ; Van Meel, Marieke ; Renault, Daniel ; von Gizycki, Rainald ; Santoro, Michele ; Landais, Paul ; Torreri, Paola ; Carta, Claudio ; Mascalzoni, Deborah ; Gainotti, Sabina ; Lopez, Estrella ; Ambrosini, Anna ; Müller, Heimo ; Reis, Robert ; Bianchi, Fabrizio ; Rubinstein, Yaffa R ; Lochmüller, Hanns ; Taruscio, Domenica

International journal of environmental research and public health, 2018-08, Vol.15 (8), p.1644 [Periódico revisado por pares]

Switzerland: MDPI AG

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6
RegistrAME: the Spanish self-reported patient registry of spinal muscular atrophy
RegistrAME: the Spanish self-reported patient registry of spinal muscular atrophy
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RegistrAME: the Spanish self-reported patient registry of spinal muscular atrophy

Cattinari, Maria Grazia ; de Lemus, Mencía ; Tizzano, Eduardo

Orphanet journal of rare diseases, 2024-02, Vol.19 (1), p.76-76, Article 76 [Periódico revisado por pares]

England: BioMed Central Ltd

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7
EURO-NMD registry: federated FAIR infrastructure, innovative technologies and concepts of a patient-centred registry for rare neuromuscular disorders
EURO-NMD registry: federated FAIR infrastructure, innovative technologies and concepts of a patient-centred registry for rare neuromuscular disorders
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EURO-NMD registry: federated FAIR infrastructure, innovative technologies and concepts of a patient-centred registry for rare neuromuscular disorders

Atalaia, Antonio ; Wandrei, Dagmar ; Lalout, Nawel ; Thompson, Rachel ; Tassoni, Adrian ; 't Hoen, Peter A C ; Athanasiou, Dimitrios ; Baker, Suzie-Ann ; Sakellariou, Paraskevi ; Paliouras, Georgios ; D'Angelo, Carla ; Horvath, Rita ; Mancuso, Michelangelo ; van der Beek, Nadine ; Kornblum, Cornelia ; Kirschner, Janbernd ; Pareyson, Davide ; Bassez, Guillaume ; Blacas, Laura ; Jacoupy, Maxime ; Eng, Catherine ; Lamy, François ; Plançon, Jean-Philippe ; Haberlova, Jana ; Brusse, Esther ; Hoeijmakers, Janneke G J ; de Visser, Marianne ; Claeys, Kristl G ; Paradas, Carmen ; Toscano, Antonio ; Silani, Vincenzo ; Gyenge, Melinda ; Reviers, Evy ; Hamroun, Dalil ; Vroom, Elisabeth ; Wilkinson, Mark D ; Lochmuller, Hanns ; Evangelista, Teresinha

Orphanet journal of rare diseases, 2024-02, Vol.19 (1), p.66-66, Article 66 [Periódico revisado por pares]

England: BioMed Central Ltd

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8
Global patterns of breast cancer incidence and mortality: A population‐based cancer registry data analysis from 2000 to 2020
Global patterns of breast cancer incidence and mortality: A population‐based cancer registry data analysis from 2000 to 2020
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Global patterns of breast cancer incidence and mortality: A population‐based cancer registry data analysis from 2000 to 2020

Lei, Shaoyuan ; Zheng, Rongshou ; Zhang, Siwei ; Wang, Shaoming ; Chen, Ru ; Sun, Kexin ; Zeng, Hongmei ; Zhou, Jiachen ; Wei, Wenqiang

Cancer Communications, 2021-11, Vol.41 (11), p.1183-1194 [Periódico revisado por pares]

United States: John Wiley & Sons, Inc

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9
Are 90% of deaths from cancer caused by metastases?
Are 90% of deaths from cancer caused by metastases?
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Are 90% of deaths from cancer caused by metastases?

Dillekås, Hanna ; Rogers, Michael S. ; Straume, Oddbjørn

Cancer medicine (Malden, MA), 2019-09, Vol.8 (12), p.5574-5576 [Periódico revisado por pares]

United States: John Wiley & Sons, Inc

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10
Response rates in clinical quality registries and databases that collect patient reported outcome measures: a scoping review
Response rates in clinical quality registries and databases that collect patient reported outcome measures: a scoping review
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Response rates in clinical quality registries and databases that collect patient reported outcome measures: a scoping review

Ruseckaite, Rasa ; Mudunna, Chethana ; Caruso, Marisa ; Ahern, Susannah

Health and quality of life outcomes, 2023-07, Vol.21 (1), p.71-71, Article 71 [Periódico revisado por pares]

England: BioMed Central Ltd

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