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Facing and dealing with emotional turbulence: Living with newly diagnosed Parkinson's disease

Hammarlund, Catharina Sjödahl ; Khalaf, Atika ; Westergren, Albert ; Hagell, Petra Lilja ; Hagell, Peter

Scandinavian journal of caring sciences, 2024-03 [Periódico revisado por pares]

Sweden

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  • Título:
    Facing and dealing with emotional turbulence: Living with newly diagnosed Parkinson's disease
  • Autor: Hammarlund, Catharina Sjödahl ; Khalaf, Atika ; Westergren, Albert ; Hagell, Petra Lilja ; Hagell, Peter
  • Assuntos: de novo ; Health Sciences ; Hälsovetenskap ; impact ; Medical and Health Sciences ; Medicin och hälsovetenskap ; newly diagnosed ; Nursing ; Omvårdnad ; Parkinson's disease ; qualitative research
  • É parte de: Scandinavian journal of caring sciences, 2024-03
  • Notas: ObjectType-Article-1
    SourceType-Scholarly Journals-1
    ObjectType-Feature-2
    content type line 23
  • Descrição: The experiences of living with Parkinson's disease (PD) from the perspective of newly diagnosed persons with PD (PwPD) have not been previously described. This study aimed to gain a better understanding of the impact of living with the early stages of PD. A qualitative interview study was conducted among nine persons, seven men and two women, from southern Sweden. Participants had a median age of 71 (min-max, 64-77) years and had been diagnosed with PD for a median of 5 (min-max, 2-12) months. Interviews were recorded and analysed using systematic text condensation. The analysis resulted in one core category, Facing and dealing with emotional turbulence, and four categories with 2-3 subcategories each: Something is wrong (Vague signs of change; Losing control); The going gets tough (Recalling; Lack of motivation); Losing direction (Uncertainties; Frightened of disease progression) and Dealing with life (Avoiding social situations; Hope and despair; Ease worries). Newly diagnosed PwPD face emotional turbulence with increasing challenges in managing everyday basic needs. Impaired functioning affects self-esteem and identity, which calls for strategies to overcome emotional reactions of embarrassment, frustration and worry. A sense of lost control and direction increased as the future became more uncertain. The participants' emotional burden and struggle to find a reason to go on or some solution to their new situation left them with both hope and despair. Our results suggest that a person-centred needs-based approach may help newly diagnosed PwPD deal with their new life situation.
  • Editor: Sweden
  • Idioma: Inglês
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  • Realização: ABCD-USP USP   Logos de Redes Sociais: Freepik

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