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Validation of a culturally adapted Swedish-language version of the Death Literacy Index

Johansson, Therese ; Olsson, Åsa ; Tishelman, Carol ; Noonan, Kerrie ; Leonard, Rosemary ; Eriksson, Lars E ; Goliath, Ida ; Cohen, Joachim De Pascalis, Vilfredo

PloS one, 2023-11, Vol.18 (11), p.e0295141-e0295141 [Periódico revisado por pares]

San Francisco, CA USA: Public Library of Science

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  • Título:
    Validation of a culturally adapted Swedish-language version of the Death Literacy Index
  • Autor: Johansson, Therese ; Olsson, Åsa ; Tishelman, Carol ; Noonan, Kerrie ; Leonard, Rosemary ; Eriksson, Lars E ; Goliath, Ida ; Cohen, Joachim
  • De Pascalis, Vilfredo
  • Assuntos: Analysis ; Annan medicin och hälsovetenskap ; Australia ; Biology and Life Sciences ; Evaluation ; Health literacy ; Health surveys ; Literacy ; Medical and Health Sciences ; Medicin och hälsovetenskap ; Medicine and Health Sciences ; Mortality ; Other Medical Sciences ; Other Medical Sciences not elsewhere specified ; People and places ; Physical Sciences ; Research and Analysis Methods ; Social Sciences ; Sweden ; United Kingdom ; Övrig annan medicin och hälsovetenskap
  • É parte de: PloS one, 2023-11, Vol.18 (11), p.e0295141-e0295141
  • Notas: ObjectType-Article-1
    SourceType-Scholarly Journals-1
    ObjectType-Feature-2
    content type line 23
    Competing Interests: The authors have declared that no competing interests exist.
  • Descrição: The death literacy index (DLI) was developed in Australia to measure death literacy, a set of experience-based knowledge needed to understand and act on end-of-life (EOL) care options but has not yet been validated outside its original context. The aim of this study was to develop a culturally adapted Swedish-language version of the DLI, the DLI-S, and assess sources of evidence for its validity in a Swedish context. The study involved a multi-step process of translation and cultural adaptation and two validation phases: examining first content and response process validity through expert review (n = 10) and cognitive interviews (n = 10); and second, internal structure validity of DLI-S data collected from an online cross-sectional survey (n = 503). The psychometric evaluation involved analysis of descriptive statistics on item and scale-level, internal consistency and test-retest reliability, and confirmatory factor analysis. During translation and adaptation, changes were made to adjust items to the Swedish context. Additional adjustments were made following findings from the expert review and cognitive interviews. The content validity index exceeded recommended thresholds (S-CVI.sub.Ave = 0.926). The psychometric evaluation provided support for DLI-S' validity. The hypothesized six-factor model showed good fit (X.sup.2 = 1107.631 p<0.001, CFI = 0.993, TLI = 0.993, RMSEA = 0.064, SRMR = 0.054). High internal consistency reliability was demonstrated for the overall scale (Cronbach's [alpha] = 0.94) and each sub-scale ([alpha] 0.81-0.92). Test-retest reliability was acceptable, ICC ranging between 0.66-0.85. Through a comprehensive assessment of several sources of evidence, we show that the DLI-S demonstrates satisfactory validity and acceptability to measure death literacy in the Swedish context. There are, however, indications that the sub-scales measuring community capacity perform worse in comparison to other sca and may function differently in Sweden than in the original context. The DLI-S has potential to contribute to research on community-based EOL interventions.
  • Editor: San Francisco, CA USA: Public Library of Science
  • Idioma: Inglês
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  • Realização: ABCD-USP USP   Logos de Redes Sociais: Freepik

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