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Lung transplant referral for individuals with cystic fibrosis: Cystic Fibrosis Foundation consensus guidelines

Ramos, Kathleen J. ; Smith, Patrick J. ; McKone, Edward F. ; Pilewski, Joseph M. ; Lucy, Amy ; Hempstead, Sarah E. ; Tallarico, Erin ; Faro, Albert ; Rosenbluth, Daniel B. ; Gray, Alice L. ; Dunitz, Jordan M.

Journal of cystic fibrosis, 2019-05, Vol.18 (3), p.321-333 [Periódico revisado por pares]

Netherlands: Elsevier B.V

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  • Título:
    Lung transplant referral for individuals with cystic fibrosis: Cystic Fibrosis Foundation consensus guidelines
  • Autor: Ramos, Kathleen J. ; Smith, Patrick J. ; McKone, Edward F. ; Pilewski, Joseph M. ; Lucy, Amy ; Hempstead, Sarah E. ; Tallarico, Erin ; Faro, Albert ; Rosenbluth, Daniel B. ; Gray, Alice L. ; Dunitz, Jordan M.
  • Assuntos: Advanced lung disease ; Communication ; Lung transplant ; Modifiable barriers ; Referral ; Transplant
  • É parte de: Journal of cystic fibrosis, 2019-05, Vol.18 (3), p.321-333
  • Notas: ObjectType-Article-1
    SourceType-Scholarly Journals-1
    ObjectType-Feature-2
    ObjectType-Review-3
    content type line 23
    Daniel J. Dorgan: Paul F. Harron Jr. Lung Center, Division of Pulmonary, Allergy, and Critical Care, Dept of Medicine, Perelman School of Medicine, Philadelphia, PA, USA; daniel.dorgan@uphs.upenn.edu
    Sarah E. Hempstead: shempstead@cff.org
    Amy Lucy: amy.lucy1012@yahoo.com
    Alice L. Gray: alice.l.gray@ucdenver.edu
    John R. McArdle: Dept of Pulmonary & Critical Care, Starling Physicians, Hartford, CT, USA; john.mcardle@hhchealth.org
    Albert Faro: afaro@cff.org
    Kathleen J. Ramos – Chair: ramoskj@uw.edu
    Erin Tallarico: etallarico@cff.org
    Jordan M. Dunitz – Chair: dunit001@umn.edu
    George B. Mallory Jr.: Department of Pediatrics, Section of Pediatric Pulmonology, Baylor College of Medicine, Texas Children’s Hospital, Houston, TX, USA; gbmallor@texaschildrens.org
    Joseph M. Pilewski: pilewskijm@upmc.edu
    Erin L. Mahoney: Department of Internal Medicine, Loyola University Medical Center, Maywood, IL, USA; emahoney@lumc.edu
    Daniel B. Rosenbluth: rosenbluthd@wustl.edu
    Martha Markovitz: Keck School of Medicine of USC, Los Angeles, CA, USA; martha.markovitz@med.usc.edu
    CF Lung Transplant Referral Guidelines Committee
    Patrick J. Smith: patrick.j.smith@duke.edu
    Melinda Solomon: Division of Respiratory Medicine, The Hospital for Sick Children, Toronto, ON, Canada; melinda.solomon@sickkids.ca
  • Descrição: Provide recommendations to the cystic fibrosis (CF) community to facilitate timely referral for lung transplantation for individuals with CF. The CF Foundation organized a multidisciplinary committee to develop CF Lung Transplant Referral Consensus Guidelines. Three workgroups were formed: timing for transplant referral; modifiable barriers to transplant; and transition to transplant care. A focus group of lung transplant recipients with CF and spouses of CF recipients informed guideline development. The committee formulated 21 recommendation statements based on literature review, committee member practices, focus group insights, and in response to public comment. Critical approaches to optimizing access to lung transplant include early discussion of this treatment option, assessment for modifiable barriers to transplant, and open communication between the CF and lung transplant centers. These guidelines will help CF providers counsel their patients and may reduce the number of individuals with CF who die without consideration for lung transplant. •Annual discussion of lung transplant is recommended for individuals with FEV1 < 50%•Screen for markers of increased disease severity & modifiable barriers to transplant•Early referral for lung transplant is essential to optimize access and outcomes•Refer all adults with CF when FEV1 < 30% predicted, sooner if other severity indicators•US transplant center practices vary; consultation with >1 center may be necessary
  • Editor: Netherlands: Elsevier B.V
  • Idioma: Inglês
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