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Family genetic result communication in rare and undiagnosed disease communities: Understanding the practice

LeBlanc, Kimberly ; Acosta, Maria T ; Adams, David R. ; Bacino, Carlos A. ; Bademci, Guney ; Bale, Jim ; Bamshad, Michael ; Barbouth, Deborah ; Beggs, Alan H. ; Bejerano, Gill ; Bivona, Stephanie ; Blue, Elizabeth ; Bonnenmann, Carsten ; Brokamp, Elly ; Butte, Manish J. ; Byrd, William E. ; Chang, Ta Chen Peter ; Coakley, Terra R. ; Cobban, Laurel A. ; Cogan, Joy D. ; Coggins, Matthew ; Colley, Heather A. ; Cooper, Cynthia M. ; Cunningham, Michael ; Dasari, Surendra ; Dayal, Jyoti G. ; Deardorff, Matthew ; Dell'Angelica, Esteban C. ; Duncan, Laura ; Eckstein, David J. ; Emrick, Lisa T. ; Eng, Christine M. ; Esteves, Cecilia ; Estwick, Tyra ; Fieg, Elizabeth L. ; Findley, Laurie C. ; Fresard, Laure ; Goldstein, David B. ; Grajewski, Alana ; Gropman, Andrea L. ; Hahn, Sihoun ; Hamid, Rizwan ; High, Frances ; Hing, Anne ; Hisama, Fuki M. ; Holm, Ingrid A. ; Huang, Yong ; Jarvik, Jeffrey ; Kohane, Isaac S. ; Kohler, Jennefer N. ; Krakow, Deborah ; Kravets, Elijah ; Koziura, Mary ; Lam, Byron ; Lam, Christina ; Lanpher, Brendan C. ; Lau, C. Christopher ; Lee, Brendan H. ; Lewis, Richard A. ; Maduro, Valerie V. ; Mamounas, Laura A. ; Maravilla, Kenneth ; Marom, Ronit ; McCormack, Colleen E. ; McCray, Alexa T. ; Mefford, Heather ; Merritt, J. Lawrence ; Nicholas, Sarah K. ; Pak, Stephen ; Pallais, J. Carl ; Palmer, Christina G.S. ; Parker, Neil H. ; Raskind, Wendy ; Rao, Deepak A. ; Sacco, Ralph ; Scott, C. Ron ; Schaechter, Judy ; Schedl, Timothy ; Schoch, Kelly ; Sharma, Prashant ; Shin, Jimann ; Sillari, Catherine H. ; Sinsheimer, Janet S. ; Smith, Kevin S. ; Stoler, Joan M. ; Sullivan, Jennifer A. ; Sun, Angela ; Tamburro, Cecelia P. ; Telischi, Fred ; Toro, Camilo ; Vogel, Tiphanie P. ; Wahl, Colleen E. ; Perry, Katherine Wesseling ; Westerfield, Monte ; Wheeler, Matthew T. ; Whitlock, Jordan ; Woods, Jeremy D. ; Yamamoto, Shinya ; Yu, Guoyun ; Zhao, Chunli

Journal of genetic counseling, 2021-04, Vol.30 (2), p.439-447 [Periódico revisado por pares]

United States: Blackwell Publishing Ltd

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