Using Social Media as a Research Recruitment Tool: Ethical Issues and Recommendations

• Autor: Gelinas, Luke ; Pierce, Robin ; Winkler, Sabune ; Cohen, I. Glenn ; Lynch, Holly Fernandez ; Bierer, Barbara E.
• Assuntos: Bioethics ; Biomedical Research - ethics ; Confidentiality - ethics ; ethics ; Ethics, Research ; Humans ; Informed Consent ; Patient Selection - ethics ; Physician-Patient Relations - ethics ; privacy ; recruitment ; social media ; Social Media - ethics ; transparency
• É parte de: American journal of bioethics, 2017-03, Vol.17 (3), p.3-14
• Notas: ObjectType-Article-1
  SourceType-Scholarly Journals-1
  ObjectType-Feature-2
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  Co-lead author. Dr. Pierce’s current affiliation is Brunel University London, School of Law.
  Co-lead author.
  This work was conducted with support from Harvard Catalyst | The Harvard Clinical and Translational Science Center (National Center for Research Resources and the National Center for Advancing Translational Sciences, National Institutes of Health Award UL1 TR001102) and financial contributions from Harvard University and its affiliated academic healthcare centers. The content is solely the responsibility of the authors and does not necessarily represent the official views of Harvard Catalyst, Harvard University and its affiliated academic healthcare centers, or the National Institutes of Health
  
• Descrição: The use of social media as a recruitment tool for research with humans is increasing, and likely to continue to grow. Despite this, to date there has been no specific regulatory guidance and there has been little in the bioethics literature to guide investigators and institutional review boards (IRBs) faced with navigating the ethical issues such use raises. We begin to fill this gap by first defending a nonexceptionalist methodology for assessing social media recruitment; second, examining respect for privacy and investigator transparency as key norms governing social media recruitment; and, finally, analyzing three relatively novel aspects of social media recruitment: (i) the ethical significance of compliance with website "terms of use"; (ii) the ethics of recruiting from the online networks of research participants; and (iii) the ethical implications of online communication from and between participants. Two checklists aimed at guiding investigators and IRBs through the ethical issues are included as appendices.
  
• Editor: United States: Taylor & Francis
  
• Idioma: Inglês