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Implementing a Transition Program from Paediatric to Adult Services in Phenylketonuria: Results After Two Years of Follow-Up with an Adult Team

Peres, Maria ; Almeida, Manuela F ; Pinto, Élia J ; Carmona, Carla ; Rocha, Sara ; Guimas, Arlindo ; Ribeiro, Rosa ; Martins, Esmeralda ; Bandeira, Anabela ; MacDonald, Anita ; Rocha, Júlio C

Nutrients, 2021-02, Vol.13 (3), p.799 [Periódico revisado por pares]

Switzerland: MDPI AG

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Título:
Implementing a Transition Program from Paediatric to Adult Services in Phenylketonuria: Results After Two Years of Follow-Up with an Adult Team
Autor: Peres, Maria ; Almeida, Manuela F ; Pinto, Élia J ; Carmona, Carla ; Rocha, Sara ; Guimas, Arlindo ; Ribeiro, Rosa ; Martins, Esmeralda ; Bandeira, Anabela ; MacDonald, Anita ; Rocha, Júlio C
Assuntos: adherence ; Adolescent ; Adult ; Adults ; Appointments and Schedules ; Blood ; Caregivers ; Diet ; Dietary Proteins - administration & dosage ; Dietary restrictions ; Family physicians ; Female ; Follow-Up Studies ; Health Plan Implementation ; Humans ; Longitudinal Studies ; Male ; Medical screening ; metabolic control ; Metabolism ; Nutritional status ; Nutritionists ; Patient Acceptance of Health Care - statistics & numerical data ; Patient Satisfaction ; Patients ; Pediatrics ; Phenylalanine - administration & dosage ; Phenylalanine - blood ; Phenylketonuria ; Phenylketonurias - blood ; Phenylketonurias - diet therapy ; Physicians ; Proteins ; Psychologists ; Retrospective Studies ; Sp1 protein ; Statistical analysis ; Teams ; Transition to Adult Care ; Young Adult
É parte de: Nutrients, 2021-02, Vol.13 (3), p.799
Notas: ObjectType-Article-2
SourceType-Scholarly Journals-1
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Descrição: We aimed to report the implementation of a phenylketonuria (PKU) transition program and study the effects of follow-up with an adult team on metabolic control, adherence, and loss of follow-up. Fifty-five PKU patients were analysed in the study periods (SP): 2 years before (SP1) and after the beginning of adult care (SP2). Retrospective data on metabolic control and number of clinic appointments were collected for each SP, and protein intakes were analysed. In SP2, three patients (6%) were lost to follow-up. There was a small but statistically significant increase in median number of annual blood spots from SP1 to SP2: 11 (7-15) vs. 14 (7-20); = 0.002. Mean ± SD of median blood Phe remained stable (525 ± 248 µmol/L vs. 552 ± 225 µmol/L; = 0.100); median % of blood Phe < 480 µmol/L decreased (51 (4-96)% vs. 37 (5-85)%; = 0.041) and median number of clinic appointments increased from SP1 to SP2: (5 (4-6) vs. 11 (8-13); < 0.001). No significant differences were found regarding any parameter of protein intake. Our results suggest that the implementation of an adult service was successful as impact on metabolic control was limited and attendance remained high. Continuous dietetic care likely contributed to these results by keeping patients in follow-up and committed to treatment.
Editor: Switzerland: MDPI AG
Idioma: Inglês

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Implementing a Transition Program from Paediatric to Adult Services in Phenylketonuria: Results After Two Years of Follow-Up with an Adult Team

Peres, Maria ; Almeida, Manuela F ; Pinto, Élia J ; Carmona, Carla ; Rocha, Sara ; Guimas, Arlindo ; Ribeiro, Rosa ; Martins, Esmeralda ; Bandeira, Anabela ; MacDonald, Anita ; Rocha, Júlio C

Switzerland: MDPI AG

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