skip to main content
Idioma:

Patient co‐design of digital health storytelling tools for multimorbidity: A phenomenological study

Cummings, Marissa ; Bradley, Jay ; Teal, Gemma

Health expectations : an international journal of public participation in health care and health policy, 2022-12, Vol.25 (6), p.3073-3084 [Periódico revisado por pares]

England: John Wiley & Sons, Inc

Texto completo disponível

Citações Citado por
  • Título:
    Patient co‐design of digital health storytelling tools for multimorbidity: A phenomenological study
  • Autor: Cummings, Marissa ; Bradley, Jay ; Teal, Gemma
  • Assuntos: Adult ; Care and treatment ; Co-design ; Communication ; Comorbidity ; Computerized medical records ; Design ; digital ; Electronic health records ; Electronic medical records ; Electronic records ; Empowerment ; Field study ; Health records ; Humans ; Interviews ; Multimorbidity ; Narration ; narrative medicine ; Narratives ; Original ; participatory visual methods ; Patients ; Prototypes ; reflexive interviewing ; Storytelling ; United Kingdom ; Visual representation
  • É parte de: Health expectations : an international journal of public participation in health care and health policy, 2022-12, Vol.25 (6), p.3073-3084
  • Notas: ObjectType-Article-1
    SourceType-Scholarly Journals-1
    ObjectType-Feature-2
    content type line 23
  • Descrição: Background Interest in both narrative medicine and electronic health records has increased over the past 30 years. However, electronic health records are mainly written by and for clinicians, and the patient narrative and voice are not incorporated. Recent studies within the United Kingdom have indicated that there is a need to incorporate patient stories into health records, to improve quality and continuity of care. This is particularly important when treating people with multiple long‐term health conditions (multimorbidity), whose health stories can be particularly complex. Objective To understand the goals and requirements of people with multimorbidity for digital health storytelling tools. Methods The methodology uses narrative within a phenomenological approach to inform a process of co‐design. Results The findings indicate that people living with multimorbidity would use health storytelling tools to understand and reflect on their journeys, convey their experiences to others and advocate for themselves against scepticism. Conclusion Outputs from the project give insight into the lived experience of multimorbidity, as well as understanding the goals of people living with multimorbidity for using health storytelling tools as part of treatment and self‐management. Future research could explore other areas such as collaborative health storytelling or the technical implementation of tools. Patient or Public Contribution Five adults with multiple long‐term conditions participated in the project, and research was carried out in three stages. First, semistructured interviews were used to understand each participant's health story. Second, each participant worked with the researcher to co‐design a visual representation of their story. Finally, digital prototypes based on their health story were reviewed with each of the participants.
  • Editor: England: John Wiley & Sons, Inc
  • Idioma: Inglês
Links
Voltar para lista de resultados

  • Realização: ABCD-USP USP   Logos de Redes Sociais: Freepik

Buscando em bases de dados remotas. Favor aguardar.