Impact of Measures to Enhance the Value of Observational Surveys in Rare Diseases: The Fabry Outcome Survey (FOS)

Clarke, Joe T.R., MD, PhD ; Giugliani, Roberto, MD, PhD ; Sunder-Plassmann, Gere, MD ; Elliott, Perry M., MD ; Pintos-Morell, Guillem, MD, PhD ; Hernberg-Ståhl, Elizabeth, MSc ; Malmenäs, Maria, MSc ; Beck, Michael, MD

Value in health, 2011-09, Vol.14 (6), p.862-866 [Periódico revisado por pares]

United States: Elsevier Inc

Texto completo disponível