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The PanCareSurFup cohort of 83,333 five-year survivors of childhood cancer: a cohort from 12 European countries

Grabow, Desiree ; Kaiser, Melanie ; Hjorth, Lars ; Byrne, Julianne ; Alessi, Daniela ; Allodji, Rodrigue S. ; Bagnasco, Francesca ; Bárdi, Edit ; Bautz, Andrea ; Bright, Chloe J. ; de Vathaire, Florent ; Feijen, Elizabeth A. M. ; Garwicz, Stanislaw ; Hagberg, Oskar ; Haupt, Riccardo ; Hawkins, Mike M. ; Jakab, Zsuzsanna ; Kremer, Leontien C. M. ; Kuehni, Claudia E. ; Kuonen, Rahel ; Lähteenmäki, Päivi Maria ; Reulen, Raoul C. ; Ronckers, Cécile M. ; Sacerdote, Carlotta ; Vu-Bezin, Giao ; Wesenberg, Finn ; Wiebe, Thomas ; Winter, David L. ; Winther, Jeanette Falck ; Zaletel, Lorna Zadravec ; Kaatsch, Peter

European journal of epidemiology, 2018-03, Vol.33 (3), p.335-349 [Periódico revisado por pares]

Dordrecht: Springer

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Título:
The PanCareSurFup cohort of 83,333 five-year survivors of childhood cancer: a cohort from 12 European countries
Autor: Grabow, Desiree ; Kaiser, Melanie ; Hjorth, Lars ; Byrne, Julianne ; Alessi, Daniela ; Allodji, Rodrigue S. ; Bagnasco, Francesca ; Bárdi, Edit ; Bautz, Andrea ; Bright, Chloe J. ; de Vathaire, Florent ; Feijen, Elizabeth A. M. ; Garwicz, Stanislaw ; Hagberg, Oskar ; Haupt, Riccardo ; Hawkins, Mike M. ; Jakab, Zsuzsanna ; Kremer, Leontien C. M. ; Kuehni, Claudia E. ; Kuonen, Rahel ; Lähteenmäki, Päivi Maria ; Reulen, Raoul C. ; Ronckers, Cécile M. ; Sacerdote, Carlotta ; Vu-Bezin, Giao ; Wesenberg, Finn ; Wiebe, Thomas ; Winter, David L. ; Winther, Jeanette Falck ; Zaletel, Lorna Zadravec ; Kaatsch, Peter
Assuntos: 5-Year survivors ; Adolescent ; Cancer ; Cancer and Oncology ; Cancer och onkologi ; Cancer Survivors - statistics & numerical data ; Cardiology ; Child ; Child, Preschool ; Childhood and adolescent cancer ; Children ; Clinical Medicine ; Cohort Effect ; Consortia ; Data collection ; Epidemiology ; Europe - epidemiology ; European Cohort ; Female ; Follow-up ; Health risk assessment ; Health risks ; Heart ; Heart diseases ; Humans ; Infectious Diseases ; Klinisk medicin ; Late effects ; Life Sciences ; Male ; Medical and Health Sciences ; Medicin och hälsovetenskap ; Medicine ; Medicine & Public Health ; Mortality ; Neoplasms - mortality ; Neoplasms - therapy ; NEW STUDY ; Oncology ; Patients ; Public Health ; Registries - statistics & numerical data ; Risk analysis ; Risk factors ; Santé publique et épidémiologie ; Survival Rate
É parte de: European journal of epidemiology, 2018-03, Vol.33 (3), p.335-349
Notas: ObjectType-Article-1
SourceType-Scholarly Journals-1
ObjectType-Feature-2
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PMCID: PMC5889790
Descrição: Childhood cancer survivors face risks from a variety of late effects, including cardiac events, second cancers, and late mortality. The aim of the pan-European PanCare Childhood and Adolescent Cancer Survivor Care and Follow-Up Studies (PanCareSurFup) Consortium was to collect data on incidence and risk factors for these late effects among childhood cancer survivors in Europe. This paper describes the methodology of the data collection for the overall PanCareSurFup cohort and the outcome-related cohorts. In PanCareSurFup 13 data providers from 12 countries delivered data to the data centre in Mainz. Data providers used a single variable list that covered all three outcomes. After validity and plausibility checks data was provided to the outcome-specific working groups. In total, we collected data on 115,596 patients diagnosed with cancer from 1940 to 2011, of whom 83,333 had survived 5 years or more. Due to the eligibility criteria and other requirements different numbers of survivors were eligible for the analysis of each of the outcomes. Thus, 1014 patients with at least one cardiac event were identified from a cohort of 39,152 5-year survivors; for second cancers 3995 survivors developed at least one second cancer from a cohort of 71,494 individuals, and from the late mortality cohort of 79,441 who had survived at least 5 years, 9247 died subsequently. Through the close cooperation of many European countries and the establishment of one central data collection and harmonising centre, the project succeeded in generating the largest cohort of children with cancer to date.
Editor: Dordrecht: Springer
Idioma: Inglês;Norueguês

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The PanCareSurFup cohort of 83,333 five-year survivors of childhood cancer: a cohort from 12 European countries

Dordrecht: Springer

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