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Patients' knowledge and attitudes regarding living with implantable electronic devices: results of a multicentre, multinational patient survey conducted by the European Heart Rhythm Association

Haugaa, Kristina Hermann ; Potpara, Tatjana S ; Boveda, Serge ; Deharo, Jean-Claude ; Chen, Jian ; Dobreanu, Dan ; Fumagalli, Stefano ; Lenarczyk, Radoslaw ; Hernandez Madrid, Antonio ; Larsen, Torben Bjerregaard ; Sciarrafia, Elena ; Taborsky, Milos ; Tilz, Roland Richard ; Pieragnoli, Paolo ; Przybylski, Andrzej ; Dagres, Nikolaos

Europace (London, England), 2018-02, Vol.20 (2), p.386-391 [Periódico revisado por pares]

England

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Título:
Patients' knowledge and attitudes regarding living with implantable electronic devices: results of a multicentre, multinational patient survey conducted by the European Heart Rhythm Association
Autor: Haugaa, Kristina Hermann ; Potpara, Tatjana S ; Boveda, Serge ; Deharo, Jean-Claude ; Chen, Jian ; Dobreanu, Dan ; Fumagalli, Stefano ; Lenarczyk, Radoslaw ; Hernandez Madrid, Antonio ; Larsen, Torben Bjerregaard ; Sciarrafia, Elena ; Taborsky, Milos ; Tilz, Roland Richard ; Pieragnoli, Paolo ; Przybylski, Andrzej ; Dagres, Nikolaos
Assuntos: Adaptation, Psychological ; Aged ; Cardiac implantable electronic devices ; Cardiac resynchronization therapy ; Cardiac Resynchronization Therapy Devices ; Complications ; Cost of Illness ; Defibrillators, Implantable ; EHRA survey ; Europe ; Female ; Health Care Surveys ; Health Knowledge, Attitudes, Practice ; Heart Diseases - physiopathology ; Heart Diseases - psychology ; Heart Diseases - therapy ; Humans ; Implantable cardioverter-defibrillator ; Male ; Middle Aged ; Pacemaker ; Pacemaker, Artificial ; Patient Education as Topic ; Patient knowledge ; Patient Preference ; Patients - psychology ; Prospective Studies ; Prosthesis Failure ; Quality of Life
É parte de: Europace (London, England), 2018-02, Vol.20 (2), p.386-391
Notas: ObjectType-Article-1
SourceType-Scholarly Journals-1
ObjectType-Feature-2
content type line 23
Descrição: The purpose of this patient survey was to analyse the knowledge, experiences, and attitudes regarding cardiac implantable electronic devices (CIED) in patients with pacemakers, implantable cardioverter-defibrillators (ICDs), or cardiac resynchronization devices. Of the 1644 patients with CIEDs from seven European countries, 88% were over 50 years of age. Most patients (90%) knew what device they were implanted with and felt sufficiently informed about the indications for therapy. As many as 42% of patients needed additional information on the battery replacement and limitations in physical activity. The self-reported incidence of complications was 9%, and among these, a quarter of the respondents felt insufficiently informed about the possibility of complications and their management. The majority of patients (83%) were followed by face-to-face visits, which was the most commonly preferred follow-up strategy by the patients. Nearly 75% of the patients reported improved quality of life after device implantation, but about 40% had worries about their device. Less than 20% had discussed with their physician or thought about device handling in the end-of-life circumstances or end-stage disease. Notably, almost 20% of the ICD patients did not wish to answer the question regarding what they wanted to be done with their ICD in case of end-stage disease, indicating the challenges in approaching these issues.
Editor: England
Idioma: Inglês;Norueguês

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Patients' knowledge and attitudes regarding living with implantable electronic devices: results of a multicentre, multinational patient survey conducted by the European Heart Rhythm Association

England

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