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Diversity and inclusion for the All of Us research program: A scoping review

Mapes, Brandy M ; Foster, Christopher S ; Kusnoor, Sheila V ; Epelbaum, Marcia I ; AuYoung, Mona ; Jenkins, Gwynne ; Lopez-Class, Maria ; Richardson-Heron, Dara ; Elmi, Ahmed ; Surkan, Karl ; Cronin, Robert M ; Wilkins, Consuelo H ; Pérez-Stable, Eliseo J ; Dishman, Eric ; Denny, Joshua C ; Rutter, Joni L Giles, Emma Louise

PloS one, 2020-07, Vol.15 (7), p.e0234962-e0234962 [Periódico revisado por pares]

United States: Public Library of Science

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Título:
Diversity and inclusion for the All of Us research program: A scoping review
Autor: Mapes, Brandy M ; Foster, Christopher S ; Kusnoor, Sheila V ; Epelbaum, Marcia I ; AuYoung, Mona ; Jenkins, Gwynne ; Lopez-Class, Maria ; Richardson-Heron, Dara ; Elmi, Ahmed ; Surkan, Karl ; Cronin, Robert M ; Wilkins, Consuelo H ; Pérez-Stable, Eliseo J ; Dishman, Eric ; Denny, Joshua C ; Rutter, Joni L
Giles, Emma Louise
Assuntos: Biology and Life Sciences ; Biomedical research ; Biomedical Research - ethics ; Biomedical Research - methods ; Cognitive ability ; Cohort analysis ; Cohort Studies ; Cultural Diversity ; Demographic aspects ; Demographics ; Demography ; Demography - methods ; Ecology and Environmental Sciences ; Ethnicity ; Female ; Gender identity ; Genetics ; Health aspects ; Health care disparities ; Health disparities ; Health services ; Humans ; Informatics ; Knowledge management ; Male ; Management ; Medical research ; Medicine and Health Sciences ; Medicine, Experimental ; Metropolitan areas ; Minority & ethnic groups ; Minority Groups ; Multiculturalism ; Multiculturalism & pluralism ; Population Health ; Poverty ; Precision medicine ; Precision Medicine - methods ; Prevention ; Race ; Racial Groups ; Research and Analysis Methods ; Rural areas ; Social aspects ; Social Sciences ; United States
É parte de: PloS one, 2020-07, Vol.15 (7), p.e0234962-e0234962
Notas: ObjectType-Article-1
SourceType-Scholarly Journals-1
ObjectType-Feature-2
content type line 23
Competing Interests: The authors have declared that no competing interests exist.
Membership of the the All of Us Research Program is provided in the Acknowledgments.
Descrição: The All of Us Research Program (All of Us) is a national effort to accelerate health research by exploring the relationship between lifestyle, environment, and genetics. It is set to become one of the largest research efforts in U.S. history, aiming to build a national resource of data from at least one million participants. All of Us aims to address the need for more diversity in research and set the stage for that diversity to be leveraged in precision medicine research to come. This paper describes how the program assessed demographic characteristics of participants who have enrolled in other U.S. biomedical research cohorts to better understand which groups are traditionally represented or underrepresented in biomedical research. We 1) reviewed the enrollment characteristics of national cohort studies like All of Us, and 2) surveyed the literature, focusing on key diversity categories essential to the program's enrollment aims. Based on these efforts, All of Us emphasizes enrollment of racial and ethnic minorities, and has formally designated the following additional groups as historically underrepresented: individuals-with inadequate access to medical care; under the age of 18 or over 65; with an annual household income at or below 200% of the federal poverty level; who have a cognitive or physical disability; have less than a high school education or equivalent; are intersex; identify as a sexual or gender minority; or live in rural or non-metropolitan areas. Research accounting for wider demographic variability is critical. Only by ensuring diversity and by addressing the very barriers that limit it, can we position All of Us to better understand and tackle health disparities.
Editor: United States: Public Library of Science
Idioma: Inglês

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Diversity and inclusion for the All of Us research program: A scoping review

United States: Public Library of Science

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