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Deserving but not entitled: The social construction of autism spectrum disorder in federal policy

Chiri, Giuseppina ; Bergey, Meredith ; Mackie, Thomas I.

Social science & medicine (1982), 2022-05, Vol.301, p.114974-114974, Article 114974 [Periódico revisado por pares]

England: Elsevier Ltd

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Título:
Deserving but not entitled: The social construction of autism spectrum disorder in federal policy
Autor: Chiri, Giuseppina ; Bergey, Meredith ; Mackie, Thomas I.
Assuntos: Autism ; Autism spectrum disorder ; Autism Spectrum Disorder - diagnosis ; Autism Spectrum Disorder - therapy ; Autistic Disorder ; Causality ; Child ; Childhood ; Constructionism ; Content analysis ; Disability ; Disabled Persons ; Health services ; Humans ; Legislation ; Medical personnel ; Medical research ; Medicalization ; Medicine ; Policy design theory ; Prevalence ; Professional training ; Public health ; Public opinion ; Public Policy ; Social construction ; Social constructionism ; Social factors ; Surveillance ; Symbolism ; United States
É parte de: Social science & medicine (1982), 2022-05, Vol.301, p.114974-114974, Article 114974
Notas: ObjectType-Article-1
SourceType-Scholarly Journals-1
ObjectType-Feature-2
content type line 23
Descrição: Public policies play an influential role in shaping public opinion about health conditions, who is affected by them, and potential pathways for identification and intervention. This study draws upon a social constructionist perspective of policy design and disability to examine how autism spectrum disorder (ASD) has been framed in United States federal legislation. Qualitative content analysis of autism legislation passed between 1973 and 2019 indicates that policies reinforced ASD as a largely medicalized, neurobiological condition of childhood; this was reflected in both the policy aims, sources of knowledge and groups prioritized to address ASD; and the symbolic or material resources committed (or not committed) by enacted federal legislation to specific constituencies. Policy aims of early ASD legislation were symbolic in nature, focusing predominantly on framing children with ASD as a group worthy of public recognition. More recent legislation, in contrast, conferred material resources – albeit in targeted ways. Funding for surveillance and medical research on causation, early detection, treatment, and health professional training were prioritized with little attention to either service delivery needs of individuals with ASD and their families, supports over the lifecourse, or the social factors influencing ASD. •Public policies shape the practical realities of those affected by autism.•Socially constructed understandings of autism are embedded in policies.•Federal ASD-specific policies reinforce ASD as a largely medicalized construct.•Initial ASD policies framed children with ASD as “worthy” of recognition.•Later ASD polies conferred material resources on medical research and surveillance.
Editor: England: Elsevier Ltd
Idioma: Inglês

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Deserving but not entitled: The social construction of autism spectrum disorder in federal policy

Chiri, Giuseppina ; Bergey, Meredith ; Mackie, Thomas I.

England: Elsevier Ltd

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