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Protecting Privacy of Pregnant and LGBTQ+ Research Participants

Clayton, Ellen Wright ; Bland, Harris T ; Mittendorf, Kathleen F

JAMA : the journal of the American Medical Association, 2024-05, Vol.331 (18), p.1527-1528 [Periódico revisado por pares]

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Título:
Protecting Privacy of Pregnant and LGBTQ+ Research Participants
Autor: Clayton, Ellen Wright ; Bland, Harris T ; Mittendorf, Kathleen F
Assuntos: Confidentiality - legislation & jurisprudence ; Data Anonymization - legislation & jurisprudence ; Federal Government ; Federal regulation ; Female ; Government Regulation ; Humans ; Informed Consent - legislation & jurisprudence ; Personally Identifiable Information - legislation & jurisprudence ; Pregnancy ; Privacy ; Privacy - legislation & jurisprudence ; Refusal to Participate - legislation & jurisprudence ; Research - legislation & jurisprudence ; Research Subjects - legislation & jurisprudence ; Sexual and Gender Minorities - legislation & jurisprudence ; United States
É parte de: JAMA : the journal of the American Medical Association, 2024-05, Vol.331 (18), p.1527-1528
Notas: ObjectType-Article-1
SourceType-Scholarly Journals-1
ObjectType-Feature-2
content type line 23
Descrição: This Viewpoint summarizes existing federal regulations aimed at protecting research data, describes the challenges of enforcing these regulations, and discusses how evolving privacy technologies could be used to reduce health disparities and advance health equity among pregnant and LGBTQ+ research participants.
Editor: United States: American Medical Association
Idioma: Inglês

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